 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Katrina,
You have certainly received news you should cherish and you should enjoy every day...worry free until someone proves otherwise. You have touched on what I feel is the most difficult situation we have to face in healthcare: the severe compartmentalization. The insurance companies forced it on us, in my opinion, trying to get us away from the family doctor by paying the specialists more money which created more specialists and soon we see 5 doctors instead of 2. That sure helped control the cost, eh?
I am happy for you. I am so happy I would trade places with you if I could. Actually, I would not wish that upon you. Take care and use the knowledge you gained from hanging out in the hood to help others in our situation.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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