Platinum Member (300+ posts) Joined: Nov 2005 Posts: 306 | Donna, As you know well, there is tremendous temptation to look for / wait for the PERFECT answer. The perfect tx plan. Its a myth. Nearly every tx plan is best guess. It sounds like you are doing things right. What I don't hear is that second or third opinion about what you need to do next. Who else can you consult? Can you send reports and slides to a different set of docs and get their spin? A good treatment plan begun a week or two later is much better than a hasty plan begun right away.
Aggressive disease? Yes indeed. Aggressive treatment needed? Yes indeed. Is time of the essence? Of course. But don't get bullied or hurried into a treatment plan that you don't feel right about. Make your docs CONVINCE you they are right. Be a "tough customer", a "hard sell". They can take it, and you'll feel better about whatever you decide.
I had buckets full of chemo and so much radiation that I glowed in the dark. I had a great treatment team and a very good plan. Cancer left me alone for nearly five years. Not bad. Keep gathering ideas Donna. Keep getting opinions. You will know when you have enough to make a decision. We are with you, Tom J
SCC BOT, mets to neck, T4. From 3/03: 10wks daily multi-drug chemo, Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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