Oh Tom, I'm so sorry to hear this.
However, I believe the prognosis and treatments for SSC are very good.
Mine is a primary NSCC, but has responded to chemo by shrinking more than 50%--a seriously good result in my circumstances!
I hope your existing docs will point you in the right direction for where you should be consulting/deciding on treatment.
Keep us posted!

Brenda

Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!