Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | As someone that had a horrible, frightening week because of a false read on a PET scan, I agree with you that people who are having them need to know more about how to "behave" before and during their scan. For instance, no one told me that I should be very inactive the day before my scan and for the hour before my scan. I spent that hour talking to the guy in the chair beside me, and I can talk anyones head off. I am also a nervous "sitter", I hate to just sit without anything to do. So I have a habit of kicking and wiggling my legs, I'm never still. These things can affect a scan. The test is new and it's useful so I'm sure they'll get more particular about it as time goes on.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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