Senior Member (100+ posts) Joined: Mar 2006 Posts: 114 | I had to go back to the hospital after mine was done - from horrible pain. We thought it was infected. It turned out the tube was simply too tight - the little plastic/rubber flap that 'anchors' it outside the stomach to keep it from pulling 'in' to the stomach. If it's locked down too tight, it causes internal irritation and hurts horribly.
A simple adjustment to loosen it and I was in almost immediate relief.
I have heard of other cases of this as well.
-Steve J
Age 41 - Stage 2 SCC tongue Dx 2/06. Cisplatin x3, IMRT x35. Mets to neck node discovered 7/07. RND 40 nodes removed, margins not clear. Cisplatin, Taxotere, 5-FU Fall 07, then IMXT/Erbitux for 7 wks. Inoperable mets to both lungs and pleura Dx Oct'08. 4 cycles Carboplatin, Erbitux, 5-FU so far.
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