David got Pet/CT and CT results from 8 weeks post today. Good news and bad news. Looks like cancer gone in tonsillar area but lymphnode that was 6.3 cm started only went to 2.4-2.5cm and they are not sure whether to have surgery or not. They then have concern on node on Left which looks active???? They said it could look this way because of still so much healing going on. Also met with Surgeon (ENT) he said they will discuss case over tumor board next week Tuesday. I am concerned with node on left. They focusd so much on the right the Radtion was stronger on the right side and even the last week the did not do any radiation on left.

The RO scheduled another pet/CT 5 weeks from now. We are in Limbo which isnhorrible. The ENT stated that someone would call us after they talk in tumor board. and let us know what they think. The lymph on Right is still large and may have to be removed. But the Left really upsets and scares me that is show some difinetive activity?


I know we have to hang in there but this is so discourageing. David still cannopt take food by mouth his throat still has ulcerations roof of mouth and throat. We really hoped for more definitive outcomes. Sometimes I think the RO just read as he comes in. He seemed flustered. over the results.
Any body else with this?

One good thing is we were given samples of Gelcare for the dry mouth that david has. He tried as soon as we got hom and seemed to help for about an hour and a hal. The Bioteen products help but the are very temporary only about 10 minutes. The Gelcare even helped with his sores...Gave him some rlief.

any feed back would be great...