Gail,
We are going to Moffitt cancer center in Tampa and they have stated since very beginning the his cancer is probably
HPV based. He has NO HX of Smoking at all and NO drinking. (Occasional 3 times a year of wine) but no pattern at all. They stated they sent his samples to lab yet have had problems with lab and still do not have results. He finished TX 6/22. How and who do we contact to get this testing done. Would be interesting if we did it ourselves through John Hopkins and they still tell us they are waiting. WE have been frustrated by this. Just your overall mentality is different when there is ahigher success rate documented if it is
HPV based.
The ENT agreed with RO. The node on right which is still 2.4-2.5 will more than likely be removed. The node on the left which appreared still active will hopefully show otherwise on 9/17. We are scheduled for another PET/CT on 9/17 get results on 24th. David still has ulcerations in the back of his throat and roof of mouth and he is still definetly healing from all this. The ENT agreed with RO and we also had followup with Chemo doc who also agreed. His case will be discussed at Tumor Board on Tusday and they are supposed to call Tuesday or WEdnesday. Probably won't change think they have all already decided. We will be patient and hope it is OK as opposed to surgery on the left as well as right.