Hi Vicki,

Hope you don't mind me answering you here (you also sent me a private message regarding this) - I wouldn't want the board to think that I shun people! Anyway, we had our trachs for the same amount of time (8 1/2 months for me). I'm pretty sure my trach was a size 6 (at least that was the size of the "plug") and actually fit very comfortably (as comfortable as trachs can be). So I was fortunate there wherein you had what seems to be a poorly fitted trach. I can relate to the problem of having no tongue and trying to get the mucus up, however, I don't recall having as much mucus as you have. Remember, we're all different so I am probably not your usual case. What does collect in my mouth I end up using a lot of tissues to wipe it out (and I mean A LOT of tissues). I wish I had answers for you but it doesn't appear that I'm any help. I don't know if this makes a difference or not but during the 8 1/2 months that I had my trach, I had it capped for the last 6 1/2 months before it was removed. Funny but when it wasn't capped, it was then that I felt like I couldn't breathe - go figure! You had mentioned in your note to me that your husband was going to call the doctor tomorrow and see if what you're going thru is "normal." I think that's a smart move on your part but try to relax and breathe slow and easy. I wish I could offer you more than this.

Lots of hugs, Nancy


Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03