 Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Bailey,
I can only imagine your fear right now but don't let it get the best of you. You need to make clear decisions right now. Are you being treated at a CCC? Do you have a team of doctors? Tell us that information first. You may need a second opinion.
As far as having radition twice, I don't know of anyone that has. I DO know that there are many survivors on here that have had the type of surgery you are facing and are doing fantastic.
I think right now your best defense is to make sure you are in the hands of people that KNOW the best treatment for you and have the skills to perform that treatment.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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