 Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Peg tubes are wonderful allies. Mine came out March 9th and TX ended in October. Doctors and wife ganged up on me and wouldn't let me lose the tube until I could stablize and then gain at least 4 pounds (the scoundrels, at the time 4 lbs. seemed an insurmountable task). It was a great supplement though even after (I thought) I was eating well. Had a follow up visit today and have actually (finally) gained 2 lbs. on my own!! My point to all of this is it takes time but with focus there is a return to "normal" (whatever that is-LOL)
In response to DCS, I wouldn't "bite the bullet" and take it out on a whim. After being challenged I wanted to prove to myself that I was indeed on the right track prior to having it removed. Ladyjoe, Baby bites are a beautiful thing!!!
Keep at it & best of luck,
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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