I have had my Peg since January & am getting it out tomorrow. (I am 11 weeks post IMRT). I started out at 124 lbs so couldn't afford to lose much weight. I am now at 113 and am eating small meals (which takes forever). A week and a half ago, I decided I wanted to get rid of PEG by 6/1 so I just started acting like I didn't have it to see if I'd be OK. I realized that I could eat more than I thought if I HAD to. Sometimes it's hard but I want to get rid of the PEG-I think it will mentally help me move on from this ordeal. Not to mention, the cap pops off some when I'm playing w/ my 2 year old & then I have "food" all over us. YUCK! So, have your husband slowly wean & act like the tube is gone. He'll know if he's ready or not. It won't be easy to not be able to rely on it.

SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.