Hi Gail,

For us Caphasol is an Rx. Sine Difflam is OTC elsewhere, can it be ordered on-line. The Caphasol doesn't seem to be doing anything to relive the mouth sores. In fact, it just doesn't seem to be doing anything. Our site gave us a huge box to try, but they don't have a lot of experience with it since it is relatively new to them.

What a wonderful link you had on your post...I am going to go through the list and see if there is anything else we can try to help get Dan more comfortable.

I just paged the doc, I think thrush set in over the night in a big way. To be honest, I don't know what it is, just that I was supposed to be on the look out for it...and what they told me to look for is definitely there.

It appears that any discomfort is amplified greatly during this treatment process, as he is feeling very distressed about it.

I can't wait until these treatments are done.

By the way, I took your list to my doctor of things that helped your husband. Dan is finding some relief from items I never heard of...like Kiefer. And, we do have some RX aloe mixture that we are going to try today. They wanted us to use the Caphsol first and then try the Aloe so we could separate out how Dan reacted to each.

I haven't been successful about getting the Ethyol...I read about it early on and keep asking. They told me they, and the other docs in our state, don't believe it works and that the studies have only been done on the old RT systems and not the IMRT ones. I think if it worked on the old RT systems...it should be even better on the IMRT...but, they feel the IMRT deems it unnecessary.

I have been looking on pub med for more data...do you happen to have any? We have 3 weeks to go, do you think it's too late to keep pursuing?

M-


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.