Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | DCS,
Don't ever feel embarrassed here although I have never seen the topic of your post dicsussed since I've been a member.
I had concurrent cisplatin and radiation and before Tx my wife & I were very sexually active. During the periods where I seemed to be fighting for survival I did not seem to be very motivated and my wife was understanding. I mean I was still thinking about making love but for the first time in my life there were a few more important things ahead of it, like staying alive. I did manage to put all those other things aside occassionally but thankfully I never experienced his symptoms.
About 3 weeks post Tx all those OTHER CONCERNS went away and that part of our life returned to normal. In fact, it was like the first sign that my recovery had officially begun. I can't wait to follow this post.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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