Hello Jeff, my dx was similar as you can see at the bottom of my post here. My primary was found on my left tonsil, after my tonsillectomy. The pet scan confirmed the tonsil they just recieved the pet scan results the same afternoon after the surgery. It was fairly small but the 2 lymph nodes that they removed earlier were quite large and one that is still in there was as large or larger than the first two. I am 2 weeks post rad/chemo and meet with my surgeon this Friday to discuss the neck dissection. I'm not sure if the order of dissection to rad/chemo or vice versa is more effective. It seems like there are different opinions on this. My order of treatment was left with fewer options because of the time that passed finding the lymph node because it didn't show up in the fine needle aspiration. Then I had the node removed, found the cancer, went back in 2 days later because of alot of swelling, found no problems so the ENT removed the second node that was also cancerous. Due to the surgeries before the scans, it made the scans more difficult to read. I found the sewlling in Oct., and found the first cancerous node on 12-26 and finally started treatment on 02-06. i'm awaiting the post treatment scans and the surgery if they still find it necessary. Hang in there Jeff, read up and ask all the questions you need to. The thing that I done because I'm not very good at doing what I believe is the dr.s, nurses, and specialists jobs was find a cancer treatment center that I found had considerable experience with H&N cancer and that worked as a team. Then I did my part of doing my best to stay healthy and spent time on these forums to see if my treatments were going like the majority of everyone elses. So far it seems to be working for me. Others may feel I was way to passive about asking questions ect. I just found that every question had a = and - opinion as well as a + and - statistic. It all came down to praying and going with what I felt in my heart and the best i could do with all the confusing info. I depended a great deal on the combined experience of the members of this forum. I can unerstand what they are saying. Good Luck, Lee


Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee