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#40522 11-26-2006 12:44 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | I think I was given Anzimet. And I still had problems with the amfostine. That's interesting she's getting a scopalimine patch--I also was given that my last couple of weeks in rad because I was struggling badly with nausea from amifostine but trying to continue doing amifostine every other day. And I think it did help a little! You might see if she could switch to the amifostine every other day routine--having that day to recover in between did make it easier and my rad oncologist said he thought it would still have some beneficial effect doing it that way (better than not taking it at all).
If she has to quit the amifostine entirely, she certainly won't be alone. It is really hard on most folks and many (some stats I've hard say most) people do not make it all the way through doing amifostine every day.
I did better than most I think, I had about 22 of 33 rad treatment with amifostine. And I have all my taste back, but still have some drymouth (still have a little saliva though) 1 year and 5 months after treatment ended. Others here have had much better recovery of their saliva with no amifostine at all--so it really can vary.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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