Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi Susie, Sorry I missed your post before. I had a total laryngectomy and left neck dissection in August 2001 at Univ. of Penna hospital. Surgery was also my only option as I had had 36 rad treatments in 1997 for an unknown primary. I can actually eat much better since the surgery since I no longer choke on food and nothing can go down the wrong pipe. My voice box was removed but I have a TEP and speak very well. I had no tongue involvement. My tumor was on the larynx. I was lucky and they didn't have to take any veins from my arm as I have no flap. While I can no longer go swimming or sing, the surgery hasn't had any real impact on my normal life, but mine was quite successful. I know several people with failed TEPs. If I were given a choice between a partail and never eating again or a total and being able to eat, I would opt for the later, but everyone and every operation is different. It might be a question you want to ask the doctor. He may not know exactly what he has to remove until he gets in there to do it.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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