Hello everyone,

My husband Tom had surgery Aug 29 to remove what was thought to be a brachial cleft cyst and a tonsil that looked suspicious. The frozen section in the op room turned up nothing, then two days later a call came, they found something. The tonsil is the primary, the cyst a tumor and the surgery, geared to not clear margins or remove additional lymph nodes, needs to be completed.
Yesterday we saw the tumor board at another hosp. our previous surgeon suggested we use and aftering listening to a little back and forth between the new surgeon and the radiologist we left the meeting a little confused. The surgeon seemed to not want to do the surgery and the radiologist said it has to be surgery or rad/chemo combo. So finally the surgeon said he would do surgery and talked about a modified radical followed by 6wk mon-fri radiation. A nurse friend of mine said that it seemed there was no "point person" for treatment. Like the med oncologist? I am so new at this it did not even dawn on me to say, "do we have a point person?".
Anybody here got input to treatment direction, and we were not offered the chemo route if surg/rad route are taken. Is that the usual?
Brian, We are glad you started this thing and I know you must repeat yourself a million times. Any place you have all your insight jotted down so that someone could read you and your partners insights?