 Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Rhonda, one thing that we have not said in this thread is that the rate of false negative is very low. In other words if the PET is "clean" then it is a good thing. Also, to help with the knots in the stomach, remember not to freak out if they note "something" on his scan. It is common to have ROI (region of interest) which does not necessarily mean cancer just something to look at later.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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