Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Gail, my intention was not to be rude to you, and I don't feel that I was. I'm ok with getting conventional..........I'm here three years later! I don't "feel bad" about it, I just worry that we are making people feel like they are "less fortunate" if they cannot have IMRT. It's tough enough to start the treatment, let alone feel like we're already worse off then most.
Gary, I stand by what I said. I'm glad that you had IMRT, I wish that ALL head and neck cancer patients could. But I worry that we are going to have patients pushing their docs for it when the docs gut instinct is that they need conventional. It's a known fact that many docs out there treating oral cancer are not up to speed with everything, so could easily be talked into a treatment the patient feels is best. I'm sorry you don't agree with me. I never stated that Gail wasn't speaking facts. What I said is that Gails facts do not apply to everyone and if I were a newcomer here, I would be badgering my doctor for IMRT. We can agree to disagree.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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