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#39670 01-29-2006 08:34 PM | Joined: Jan 2006 Posts: 32 Contributing Member (25+ posts) | | Contributing Member (25+ posts) Joined: Jan 2006 Posts: 32 | Thank you SO much for all your feedback and words of wisdom.
I will give David all your points of view, experiences and knowledge. I regret that I seemed to have opened a can of worms. This was so not my intention. Next time, I will try to read more before asking ?s that have may been answered previously.
From my perspective the choice is clear, I would have the PEG just to keep my nutrients to a ultimate maximum but I am not in David's shoes.
Time often allows to define denial of the disease and battling/facing cancer and taking actions. I can't say where David's at right now but I know that he is not a man that kneeled easily in time of challenges and for him to say to me that it is a big deal and he doesn't know if he is going to be able to deal with it sends me a few flags that I can ignored as a soul mate. I am just afraid that he will be down emotionally because of it even before starting radiotherapy which is I know and I have seen it (although for ENT cases)can be invasive.
Now regarding the radiotherapy, you are scaring me here. The first plan (b4 X-Mas) was that David would have radiotherapy on both sides and then 3 cycles of cisplatin. Last week our radio-oncologist phoned David and explained that he had consulted his colleagues overseas (Canada and Australia) and they had all agreed that in a case like David, radiotherapy 70 Gy side and 52 Gy front for 7 weeks was the appropriate treatment. He went on in saying that the recurrence in his right side ( primary site) is 10% and is 20% on the other side. They felt confident since the nodes were encapsulated ( I think!!) and margins were clear and nothing was found in the neck muscles.
Did they took this in consideration balancing stats/quality of life/survival, I can't say BUT I will make sure I share your advice with David and we will have a chat with our radio-oncologist.
Again thank you and I will keep you posted. Not sure if it's appropriate though!!
ciao,Marie-Lyne
Wife of David, 44yo, SCC-BOT-R) mod. rad. ND in Jan 06. 35x standard RT from Feb-April 06. Recur on L) side same level in Sept 06 with mod rad ND. 1/48 node positive SCC + 1/48 positive micropapillary carcioma consistant with thyroid CA.
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