I think this is the first time I have posted a topic for me. Anyway here goes.

For those of you who do not know, I am a total larygectomee who has survived this disease twice. 16 months ago, I was on my way down the staircase to go to work and started spewing blood out of my lungs in giant volumes for about an hour. Never happened again. I managed to get to dr and they did CT scan and found nothing. Since then they have been running CT scans of the lungs every 2 -3 months and still nothing, although they see 'stuff' in the lungs that keep moving around which is probably due to aspiration or radiation.

So now they think I might have a 'atypical ? infection' and want to do a bronchospy which is fine with me. I don't want any more CT scans every 2 months when I am having absolutely no problems. If it makes them happy to turn their little light on in my lungs, let's do it.

But then they tell me, they want to do a biospy, actually 5 to 8 at the bottom of the lung because their little light can't see down there. I ask what the downside of this can be, and am told odds are 1 in 100 of a collapsed lung. This doc has only had a problem in 2 of over 900. They are not lookling for cancer, they are looking to rule out this infection. With the way my luck is going, I do not want to risk this.

Then they tell me, if it is this 'atypical ? infection', it is a year and a half on Zithomax. I cannot take this drug or most other antibiotics or pennicillion. They tell me all other antibiotics have worst side effects and need to be administered by IV. So I can't be treated.

Sorry to be so windy. My question is: do I let these 'over zealous' drs do the biopsy and risk the possibility of a collpased lung to see if I have this infection which we can't treat and is causing no problems or do I tell them to just peek around and not do the biopsy. Remember. noone thinks this is cancer at this point.

My gut don't do the biopsy and risk a collapsed lung unless they see something they think is cancer since we can't treat it anyway. What do you guys think?

Anyone had this procedure? Anyone had problems after lung biospy?

Thanks for your help.
Eileen