I got the following from Jeepster today. Things have taken a turn for the worse for Don and her. Please keep them in your prayers.
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Hi Ed, Sorry I haven't had much (NO) chance to get to the board. I want to, but it's hard. Time is only one problem. We have no good news...feel free to fill everyone there in since I really only want to type this once right now and I have to try and keep it short so I can get back to Don. I think the last you knew we were told he had a reoccurance in his neck (confirmed) and we got the PET moved up to the following Wednesday (one week ago)to see if it had spread below the neck. PET scan showed reoccorance at old surgury site, AND the OTHER side of his neck has an "unoperable" large tumor with unclear margins than goes from his throat, up to the inside of his ear and around to his spine and is "imobile" If that wasn't enough of a statement of "it's" evil intentions, it also showed up in his chest wall. It doesn't look good..at all. We're still fighting though. His voice is gone now completely...forever. I can't begin to describe how that feels. He had to have the trach put back in because the cancer in his head is closing the airway and ALL secretions head straight south uninhibited to his lungs.. So no suprise that after the 4 days back in the hospital to get the trach back, the next day we're at ER with bacterial pnumonia! How? He was on Augmenton for 4 weeks! Now oxygen 24 X 7. We were at Dr for trach checkup today. He's not suprised at all that he has PN.He was on Augmenton to DELAY the onset. Dr STRESSED "Contact Hospice" Somehow what Dr said last week about "less than a year" is much more imminent (in his eyes)now. But like I said, were not done. Looking for more optomistic opinions and options... have records ready to send. Any suggestions...anywhere. Plus CAM. And Prayers
Thanks Ed for writing and propting me I want people to know, just haven't had time.. You understand. I wish the best of health for you and everyone on the board please pass this on. I'll be back when I have a little time and feel a little stronger.. I don't want to bring everyone totally down.

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023