 Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Mica,
I didn't have tonsil cancer but I did have the neck disection. I can only tell you what I would do, in your situation, knowing all I know now. I would DEMAND the neck disection. I have had one, had it 17 months ago. Yes my neck is stiff, but I can turn it the full way to one side and have only slight limitations to the other side. I forget about it during the day, might think about it at night when I'm tired. This cancer is not merciful so do all you can to get it the first time.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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