Terry,

I tried the Amifostine (Ethyol) and unfortunately now list it as a known allergy. I had a terrible reaction that started about the 2nd week with my fever spiking to about 104 within 30 minutes after injection. My entire body turned red, too. It was suspected that the Ethyol was the culprit and after being hospitalized, we stopped it and the symptoms disappeared.

Strangely, I was taking Salagen and even tried Evoxac to stimulate salive but there has been more saliva since I stopped both. If the wind is blowing and I am outside, I can not open my mouth or my tongue sticks to the roof of my mouth. Waking in the morning I have a pool of thick white goo that I just rinse out. Otherwise, I can eat about anything even without drinking water. I tend to drink a lot of water because it just feels better when I swallow.

I did vomit almost on cue 30 minutes after the Ethyol injection and no amount of medication helped. Since you don't know me or where I live, I will admit I smoked pot eek and the vomiting stopped immediately. My fear of the smoking causing a recurrence and paranoia of the police or my children finding out prompted me to stop and I stopped the Ethyol anyway.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023