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#37634 07-14-2004 07:51 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | When mine was placed they used stitches and these little metal things they called toggles with one on the outside and one on the inside. I had a lot of redness, swelling, pain and discomfort in the beginning and the doctor thought it was because of the position of my stomach and the small size of it. I went back, had some water let out of the bulb but I still hurt and felt full all the time. I went back and the person that usually does the PEG tubes saw me, immediately clipped all of the stitches and told me the toggles would pass through the digestive system. She said she never uses the stitches because it just causes the tube to irritate and creates sores where the stitches are.
All the problems went away. The infusion nurses gave me some really cool gauze that had a little slot cut out and I put them around the base to soak up the goo that oozed out sometimes. I took baths and just wiped up the fresh goo with a qtip after the bath and never had another problem. I never really used it for much except liquid medicine when I couldn't swallow.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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