DenverSis,

I've never heard anything about tongue reconstruction and would totally surprised if it actually existed. I had a total glossectomy so even if there were such a procedure, I don't think it would work on me. Even without a tongue I have started eating "real" food again even though the few taste buds I have left were pretty well zapped during radiation. I also have sensitivity to food temperature. I have been working with a speech therapist and although my speech will never be the same as before, it's pretty damn good! I haven't come across anybody who hasn't been able to understand me except for the occasional word or two. Tell your sister to hang in there - everything takes time and patience.

Nancy


Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03