Hello I'm sorry your sister is going through this horrible time.

As stated so many times everbody is different, but most everyone reacts to radiation in simila ways, timing is the only difference. Fatigue will be a problem, as well as an extrememly sore mouth and throat. She will mostt likely have blisters in her mouth that turn into nastty sores that take awhile to heal. I had radidation burns on my neck. The chemoo wasn't too bad for me because I responded well to the anti-nausea meds they gave me. My veins are toast now but other than that I'm fine.

Suggestions:
get a PEG tube before radidaiton begins, some make it without, but those most likely had their whole tongue
get a suction device from a medical supply co. It will help with the thick secretions.
Stay on top of pain and bowel medications
she should sleep at least at a 45% degree angle. (no one mentionsss it but after about 3 weeks you start getting this gross brown mucous in your throoat at night. since my swallowing mechanism turned off after a while, it pooled up in the back of my throat and I would wake up 2-3 timees to suck it outt.

Please keep us updated as your sister's treatment continues.

I hope I haven't been too detailed.
Lynn


Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,