Hey Millie,
Sounds like your hubby and mine have a lot in common. Dan started with tongue cancer, surgery, mod. neck dissections. Nodes taken were negative, so no radiation. Never had anyone even suggest it. Too bad I wasn't familiar with this board at that time. 4 months later Dan has a neck tumor, radical neck dissection on Christmas eve. The oral surgeon (who by the way was also cut and dry and not extremely helpful since the beginning) couldn't get all the tumor as it was around carotid and jugular. He also said no surgery options, so we were referred to U of MD and a great oncology team with a tumor board. They did 8 weeks chemo/rad and things are good so far. Did your husband have a radical neck dissection for his chemo/rad treatments? Dan's oral surgeon didn't know the extent of the tumor until he did the radical neck dissection.

Also, Dan was having extreme facial pain from the tumor before treatments began and they prescribed Neurontinfor Dan which he still takes and it helps him. It doesn't make him foggy, either. He has been on the Duragesic Patch since treatments began...started at 25 mg. and ended up at 100 mg....has moved down to 50 mg. at this point. Intermittently, he also used Hydrocodone. He would sleep a lot during those last weeks of chemo/rad, but he needed to as it was max rad. and took so much out of him. The patch has helped Dan a lot and he doesn't sleep at all or very little during the day now even though he still wears the patch and still uses Neurontin. I also read the post about the mom who had surgery...Dan and I were a little disappointed that we had been told there were no more surgery options available after they had done the radical neck dissection.
Hope this helps and my prayers are with you!
Debbie