Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | JJ, according to the NCCN practice guidelines radiation is a "toss up" for stage 1 & 2. But you have to decide whether to hit it with all of the tools or risk recurrence (not that there are any guarantees). Yes radiation sucks - recurrence sucks a whole lot more and can be fatal. The fact that the margins were not clear and they needed to perform further surgery could very well bump this up a class. Then it really won't be an option - most prudent doctors will recommend radiation.
Recent studies of breast cancer patients showed a greatly improved survival rate for those getting surgery and radiation vs. those with surgery alone.
As far as side effects go, I have no problems with trismus or swallowing and my saliva glands (except for the one in the immediate field) are recovering.
I wasn't on liquids that long -probably about 6 months or so.
IF you are a candidate for IMRT take it! It's your best chance at sparing healthy tissue and preserving salivary function.
I went through the whole deal without a PEG tube but talk to your doctor about this (we PEGless patients are an extreme minority).
I didn't have surgery so others will have to address the flap. There was a recent thread dealing with that very issue you may want to do a search on the site and see what you come up with.
It's great that you have a positive attitude, that goes a long way to get you through to the other side. Hold on to that.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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