Hey All - well JC went in and got PEG put in and he seems to be having a difficult time with it - when he turns his neck or his legs he gets a muscle spam as he describes it, and this causes pain and discomfort of course (and it is day 3 now and still happening) - i am thinking thas this in NOT normal after reading some other posts. the PEG site itself is doing well. he has had an ulcer removed some years ago and i am wondering if this has something to do with it - has anyone else had this type of thing happen with the PEG and if so, what did you do. also, they left about 18 inches of the tubing, that seems to be alot of tubing out there from the pictures i have seen - is that normal also??
he starts IMRT on tuesday and would like to have everything taken care of before then (like him being comfortable again!)