Cynthia raises and excellent point about how previously calm rational people can become paranoid to the point of feeling like a psychiatric diagnosis is in order! I think we should include all caregivers and partners in this statement as well. Living with the "worry factor" is constant and at times overwhelming.

On a practical note, I would suggest someone go with your sister when the results are reviewed and ask the MD's to SHOW on the comparative scans what they are seeing, and offer an explanation. I would cross-check a surgeon's explanation against a radiation oncologist's and vice versa. If there is any doubt or big debate, ask if her case can be presented at tumor board and have her(and a trusted someone else) attend to hear the debate. If this is not allowed, ask for a representative from each speciality to meet with you.

Best of Luck,

Kim


kcdc
Wife of Dave,diagnosed with Stage III Tonsillar SCC,August '02
Modified radical neck dissection followed by radiation therapy
'There is glory and radiance in the darkness and to see we have only to look"