The drs say that a pet scan of the oral cavity is difficult because of the bacteria etc, thats what they say the tongue may be lighting up and maybe some from radiation although it will be a year in August, One dr said he may not eat again or if he does it culd be years because of the scar tissue from the radiation and the tumor itself and bccause it looks like the epiglotis is not working properly from the radation we will not know for sure intill we have and evaluation. But of course once again we had to cancel that because Brian ended up in the hospital with pnuemonia and they want to wait untill thats cleared up and hopefully we will have a stretch of good health to be able to get the trach out and an evaluation. Right now he is having more jaw area pain we had that under control with neuronton for nerve pain (thats what the drs belive its from) but the last week or so he has needed more morphine for breakthrough pain. And that brings me to another question, Has anyone experienced this much pain in the jaw area and have the drs said its nerve pain? Its amazing what the treatment itself can do to a person, but its a neccessary evil. And also a neccersary evil for Brian is decadron its helps keep the facial swelling down but the drs say it also can make him more susptible to infections.
B