Dear Mar, It is a given that anyone who answers your question is approaching it from a very personal perspective. I will step up here because I just went through this with my beloved husband. Our journey with this disease is pretty much spelled out in my blog, here, in the Caretakers Journal. Some things that are not in there are the experiences we had to deal with during Johns's final weeks before I brought him home to die [as was his wish]. During his emergency stay in the hospital, the radiation Doc was offering to do more rad. to try to shrink the tumors so that he could "last a few days longer", the chemo Doc was wanting to continue chemo for the same reason. Neither treatment would cure him, both would necessitate him staying in the hospital, which he did not want, both would mean more pain and suffering to him. Bottom line here for us was a very painful, very hard discussion about where he wanted his last days to be spent, and we didn't know if that was weeks or months- we just knew it wasn't going to get any better.Doctors are trained to fight to the bitter end most of the time, regardless of what the patient wants. It sounds like You are in the situation no one wants to be in. My heart goes out to you. Amy in the Ozarks


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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