Dear Jalpp, Hate to tell you this, but in our 2 years of dealing with the tx., there were lots of things that none of the medical folks prepared us for. We learned the hard way and found most of our answers here !! This is an area where caegiving is sooo tough- if you don't know what to anticipate, you don't have any way to be prepared. The only thing I can suggest is that you pound the Docs for information on everything they are doing and every drug that is prescribed and then you get on this forum and ask or research again about what others have experienced with the tx.I learned the hard way on many occasions that being fore-warned is being fore-armed! Amy in the Ozarks