Amy
Sorry you and your husband have to go through this but you have come to the best place for information and support.The people here are great. As far as food, John if he can should make every effort now to eat anything that tastes good. The loss of taste from radiation is not exaggerated. I highly recommend investing in a good blender. There is a shake with carnation instant breakfast, and ice cream posted on the site that has a ton of calories you can search for it and other ideas. Pasta in cream sauces, Soups with cream and cheese, deli roast beef in gravy all kinds of veggies in sauce, put into a blender all worked for Bob. He also lived on farina and oatmeal. Bland is best. The food issue can get really frustrating, trial and error is the only real approach and do you best to keep your sense of humor it really helps. I'm also glad you are willing to go another round with your insurance company. Denise


Caregiver Husband Bob SCC tongue t2nomo Partial Glosectomy/neck disection 6/04 rad ending 9/23/04
Osteoradio-necrosis of the Mandible (ONJ) DX 6/09 Surgery 7/2/09 mandible resection/ several teeth extracted/ neck dissection NO FLAP and aggressive antibiotic therapy.