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#27261 03-20-2005 03:04 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Neil,
First of all, never let statistics rule your life. They tell us that we are more likely to die from a car wreck than a plane crash. Does this mean we should never fly?
To answer your question, I have known many people with SCC with the primary site of tonsil, tongue, etc., but I am not sure if any is better or worse. I read on this forum sometimes that tongue cancer is the worst and I resist the temptation to say "No, tonsillar is the worst." The reality is it is all bad but not always deadly. I read today of two survivors of 40+ years and I have seen one member from 1989 still thriving. I have also seen Stage I cancer victims succumb to this disease. If we could only isolate what exactly causes some forms of SCC to be more aggresive and find a way to destroy it early, life would be wonderful.
By the way, why the interest?
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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