Lisa,

Here is a listing of all the chapters for SPOHNC (Support for People with Oral, Head and Neck Cancer), a support organization. I noticed there is a specific chapter and contact for Long Island.

http://www.spohnc.org/localchapts.html

I hope this helps and God Bless You for being there for your Aunt. Feel free to email me if you have any questions and even though I am in Texas, I would be glad to call her.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023