MeierEce,

I used to feel intimidated by my late husband's doctors. One day when we knew things were down to the wire, we armed ourselves with a list of questions so we wouldn't forget or feel silly for asking things. (You know how you have big worries at home that seem trivial when you get in front of a white coat?) Well, I am a secondary school teacher and my husband was a college professor, yet this doctor in a white coat made us feel not so smart somehow. I looked at my list of questions and decided that if my husband's life was at stake (and it was), there was no way I was NOT going to make that doctor stand there and answer every single question we had whether they were silly or redundant or time consuming, whatever.

So, that's how you have to handle this. Get the best facility you can, get the best doctor you can, then ask every question you can and don't settle for being shrugged off. If you feel like something's wrong (like my husband did for months before a big recurrence) go with your gut and keep after those doctors. It's your life and you have to protect it.

Christine


Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.