Hi bob,
I wanted to get back to you after talking with Marcy about her PT treatments.
She told me once again she is going to be a case study. There are going to be 4 different therapists working on her. They cannot believe how tight and hard all of her muscles are.
They told her she should have come in sooner after surgery, funny how nobody tells you that.
I saw her Sunday and it brought tears to my eyes to see how swollen her face had got and how she couldn't hold her head all the way up. The therapists are going to work on loosening up her muscles, trying to get her to turn her head the opposite side that surgery was done. They are also going to have a therapist working on the lymph drainage. I've read on the internet that Manual Lymph Drainage therapy and Complete Decongestive Physiotherapy is the only effective treatment for lymphedema. They are going to be doing that for Marcy. She is going to start with 2 days a week and then work up to 3 days a week.
I pray this will help her headaches. She had a hard time not crying today when we talked, it is all so hard. Well thanks for listening and maybe you could ask a therapist about the above treatments I mentioned.
Take Care,
Michelle


Michelle, sister to Marcy
Dx January 03, partial glossectomy/selective neck dissection T2N1MO/recurrence June 03, radiation and chemo/recurrence Dec. 03 mets to spine and base of skull//palliative care//lost her April 10th 2004 Age of 32