Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Joanna's, absolutely right. For me, it was of the most difficult decisions in the whole process. I got second and third opinions, a report from UCLA School of Dentistry about management of radiated teeth/mouth, full mouth x-rays, custom dental trays, professional flouride, a WaterPik, a battery operated WaterPik (Panasonic), Biotene, a baby's toothbrush, and, like Brian, have become fanatical about dental care (not that Joanna wasn't - I know she was). And her story was very similar to mine - lots of money spent on preservation over the years i.e., many crowns, regular cleaning and x-rays). The point I am trying to make is that we are all different. There are many variables, for instance, I just found out that not all dental hygienists clean below the gum. That can make all the difference. After Joanna's plight, I made an appointment immediately with my dentist and had x-rays taken and a thorough dental exam to be sure that my teeth are holding up. God knows I have enough fear about all this stuff and my teeth are doing great. I had no evidence of below the gum decay. I am writing this with a flouride tray in my mouth.
I want to caution you also that the risk of ORN is a lifetime one.
Like Brian said, I urge you to get a second opinion. I would start by having a frank discussion with your regular dentist about the actual condition of your teeth and gums.
Many have stated that losing their teeth was the most traumatic part of this experience.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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