Hi all,

It has been over 2 years for me now and I still get the problem. For me the symptom is burning of the tongue and a reduction in my sense of taste. I have never seen the classic white spots but every time the burning starts, a swish of Nystatin 2 times usually clears it right up. I think the key is not letting it get to be an advanced case. Knock it out right away. For me I can go several weeks without a problem then it comes back. I simply make sure I have a bottle of that Nystatin around at all times.

Judging from all the posts about this, I think that this is very common problem. Thankfully over time it is getting less frequent.

Angela, Please do check with her doctor, but I think your mother is still experiencing the effects of the radiation. The sore mouth can take a bit more time to go away.

Take care

Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.