I just had surgery done in September, and will start IMRT Radiation Therepy in a week, and extremely scared of what to expect as far as side effects during and long term. I was told many different side effects that vary from person to person. My treatment will last for 7 weeks and they will do more on my tongue and less on my neck.
I was shocked when I heard I had Cancer of the tongue since I don't smoke, nor drink, nor exposed to any checmical. Makes you wonder how anyone gets Cancer of this type if they don't fit the profile of the causes of Oral Cancer. In May of 07 I had what was believed to be a Canker sore, and never went away. They cut the tumor section and around the tumor area of the side of my tongue. They found some Cancer cells around the tumor. I am worried that my Cancer will spread or come back after Radiation, since nothing is 100% guaranteed.
If anyone has went through this type of Cancer, or going through it, and will get Radiation, or did get it, I would like to hear from you and your experiences. Unfortunately the Cancer Center I go to does not offer an Oral Cancer Support Group.