JJ,

I'm glad evrything is looking positive for you.
I have to say I agree with all that has been posted by these wonderful people.
In my opinion, you need to see a MO and an RO. If they agree with the ENT great but at least you have got the information from those who are most educated on the up-to-date recommended treatments for your disease.
Ask the ENT to refer you to someone, I'm sure they will not have a problem with this.

You are in my thoughts and prayers.

Mike