Minnie & Helen and to all NON
HPV SCC,
No offense meant but whenever I see a new poster that mentions tonsil or BOT primary, especially with nodal involvemnet and no mention of smoking or even smoking years and years ago, that's the first question out of my mouth and Helen, tense had/has nothing to do with it at all. It was just my way of asking.
Look, I spent a whole lifetime avoiding tobacco because I was warned 40 years ago by the Surgeon General that smoking could cause cancer and I got the same cancer people got by smoking. You spent a whole life having sex and you got the same cancer I got by having sex and it was caused by tobacco.
We are being told that they are biologically different but the cancer's name is still the same.
My mission is simple, I want to spread the word to everyone that has been Dxed with SCC that the oncology community now recognizes 2 distinct causes, simply put
HPV+ and
HPV-. I want to clean up the 2 pools and get as many people that are
HPV+ labeled accurately so that MAYBE the scientific community can use that data to better understand BOTH causes of cancer. I believe that by better understanding all the potential causes that develope into our cancer, we may one day develope a cure or a better form of Tx.
Please don't be offended. I have been a licensed CPA for 33 years. I search for answers everyday and I like black and white answers so when I get thrown into such a gray area I want to fix it. Maybe it can never be fixed, so to speak, but I'm still going to try to help all people avoid what I went through.
For people that got SCC from smoking, it's easy to tell everybody...DON"T USE TOBACCO but for people who are
HPV+, what we say..DON'T HAVE SEX? DON'T KISS ANYONE? DON'T TOUCH ANYONE? The scientific community needs the purest data possible to draw accurate conclusions and I just want to help.