Netty.........You sound so good! Good news about your "new" tongue too. I am still amazed at how well I can talk after losing over two thirds of my tongue, and the more you talk, the better it gets! I had about 6-8 months of speech therapy just to fine tune things and to help with some swallowing issues I had but after than I was good to go.
Brians right about the PEG tube...snip, snip and it's gone! Absolutely no pain involved there!
It was good hearing from you....continue to keep us all posted on your progress.....the same goes with all the others going through treatment....it's good hearing everyone's progress. Although I don't know any of you personally, I read this board almost daily and I sometimes feel like I do know you. At least I know and understand what you are going through. Sincerely, Donna
SCC first time 1989, with a diagnoses of 'cancer in situ' removed lesion, no other treatments.
SCC recurrence 1997 of tongue and floor of the mouth. Stage III /IV Hemmiglossectomy (removed over 60% of tongue/ floor of the mouth), free flap, modified neck, RAD and Chemo(cisplatin, 5fu) simutainously.
Cancer free 6, yes, six, years!
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