Hi, Amy,
He is being treated at Johns Hopkins which is about an hour from our home so that's not too bad. I do work full-time but am more flexible in the summer and I'm finding that so many appointments take longer than expected. Today he went just for a chemistry panel and neulista (sp?) and ended up there for 4 more hours for IVs and anti-nausea medication. I have gone with him for all appointments so far and will go most of the time. We have lots of friends who have volunteered to drive him (and sit with him) at least once during his treatment so this will be so helpful when I cannot go because of another commitment. I have known people a fair number of friends and family who have gone through other types of cancer treatment and very few seem to match oral cancer for it's challenges due to problems with eating, swallowing, etc. I thought I was prepared as it took quite a while to get going with the treatment but the reality is quite daunting! I've read some of the posts and ideas on coping but will spend some more time looking those over.
Thanks- Sophie H.
Sophie T.
CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+ induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
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