Just remember the doctors are treating so many people these days that they tend to focus on the disease and not the person. You do whatever it takes to feel comfortable with your level of knowledge and the treatment you are receiving. When my mother was terminally ill with ovarian cancer there were even times I emailed pictures from a digital camera to the head of GYN Oncology and we pre-admitted her to avoid the 7 hours in the emergenc room. Find the path that gives you peace of mind.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023