 Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Colleen,
I've met four people just from my doctors office over the four years since my treatment. He calls me when they are diagnosed and I go see them, talk to them, before, during and after the surgery. There is also a support group in my area that I see other patients at.
I see you haven't had radiation. You know, alot of my lip damage has been blamed on the radiation ( I had regular radiation, not IMRT) so you may not experience what I have.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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