Hi Allan from one brit to another
Rob and i live in Grayshott in Hampshire and attend The Royal Surrey Hospital in Guildford and the wonderful St Lukes Cancer Centre that is attached to it.Like me you will find differences in treatment and medication between America and England but feel free to E-mail me if you have any USA/UK questions i might be able to help you with.I sourced all the biotene dry mouth care products on line and got them delivered to the house in 24 hours.My single best buy was aqueos cream for his face and neck which to date has stopped his skin breaking down,and is readily available from any pharmacy for very little money.We also found that the recommended baking soda and salt mouthwashes were better than any commercial product we found.
Rob had his PEG fitted in hospital but only after two weeks when he hadnt eaten for three weeks ,and got so he couldn't drink either.I dont think they fit PEGS in the UK before treatment as they do in the USA unless they know that you will definately be unable to take fluids orally post surgery and of course you are having chemo as well which Robin didn't.Rob didn't remember a thing about having his PEG fitted,and it has been no problem to manage since .
All feeding products and syringes are delivered monthly to the house and are covered by NHS prescriptions,so if you dont have an exemption certificate get a prepayment certificate straight away.You can apply and pay for this online.I got Rob one and it cost