Oh Dear
Iam really not sure that either Robin or myself are gonna get through this experience!!! At the moment we are at t-4days.Radiotherapy starts on March 1st.Thursday we went to the hospital for the last simulator session and we had to hang about for ages.Robins stress levels just went through the roof!It minded me of when my children were small.I feel like turning him over my knee and paddling his bum.Nothing that anyone says or does is right .Its like he feels the world is ganging up on him .He seems to be deliberately trying to either hurt my feelings or provoke a confrontation so that he can ultimately say to me "stuff the radiotherapy,i am not going to have it "Every medication that he is given to try to help ends up in the bin and everything the doctors say is rubbish.God help us both!
It is a little difficult being a member from England because although you wonderful Americans are as supportive as i have ever seen in a group,treatment here is different in some respects,and medications is very different.No mention has been made of any provision being made rgarding a peg or any feeding advice(maybe they will do that as and when)I have already been told that these great pain patches you get are not available in this country which seems a great shame to me also there seems not much choice in pain relief availability between codeine and paracetamol and morphine.Nevertheless i am researching everything you tell me to see what our equivilants are and i think i am practically as prepared as i can be.As for the emotional preparation,ONE DAY AT A TIME lol.
Thanks again my friends
god blessyou all in your fight with this wretched disease
Liz